Purple Day is THIS Saturday!
Show you support for those of us who live everyday with this silent illness by wearing the color purple.
OhSnap! Cupcakes is featuring a special PURPLE frosted cupcake to support Epilepsy Awareness. I can't wait! (It is a lovely excuse for me to induldge in one of their fabulous cupcakes!)
I have my outfit ready and my toes are anxiously awaiting a fresh coat of Lavender nail polish.
http://purpleday.org/
Tuesday, March 22, 2011
Saturday, March 12, 2011
MRI and Medicine
As of today, I have been taking 1000mg of Keppra for a little over a week. It started with 500mg a little over 2 weeks ago. I think I was mistaken when I thought that it would be harder to adjust at first. I had no real issues until this week. The day after a dosage chage, I was a little woozy. But, now, I am tired and have a killer headache.
I had an MRI done 8 days ago. I haven't heard anything about it. So, I guess that means, "no news is good news." The MRI was intersting. I spent the whole day at the clinic. I had some work to do there first. It is definitely nice to be around familiar people in a familiar place when things are a little off. THE MRI itself was actually funny to me. I laughed at the thought of having this cage-like thing over my face. I immediately thought of Hannibal Lector. I was able to rest for about 30 minutes in the machine. I am not one to feel anxiety in tight spaces, so it did not bother me. I just took it as a great reason to relax...with a cage over my face and a really loud noise in my ear. I think anyone with small children would take that over a 30 minute temper tantrum or 30 minutes of diapering.
Eight days later, I still know nothing. That is a bit frustrating. I would like a medical professional to tell me that my brain is "okay." Crazy thoughts start to surface when you have no idea. Again, I am sure if there was something to worry about, they would have called. I did call yesterday morning to ask about the results and to discuss the lingering headache. No one ever returned my call. I tell you, healthcare needs help. But, that is another story that I just don't want to get into. My issue may be minor when compared to someone who has Parkinson's, but it isn't minor to me. It scares me. If I miss out on a full night's sleep, am I going to have another seizure? I have no idea. Are the headaches I have a normal side effect of medication? I have no idea. I did look online, but it doesn't have a headache listed as a common side effect. Of course, Doc's roll their eyes at those of us who go online to "self-diagnose." But, if we can't get a return phone call for 2 simple questions, what are we supposed to do?
So, almost a month into this whole seizure fiasco, I have a headache and I am frustrated.
I had an MRI done 8 days ago. I haven't heard anything about it. So, I guess that means, "no news is good news." The MRI was intersting. I spent the whole day at the clinic. I had some work to do there first. It is definitely nice to be around familiar people in a familiar place when things are a little off. THE MRI itself was actually funny to me. I laughed at the thought of having this cage-like thing over my face. I immediately thought of Hannibal Lector. I was able to rest for about 30 minutes in the machine. I am not one to feel anxiety in tight spaces, so it did not bother me. I just took it as a great reason to relax...with a cage over my face and a really loud noise in my ear. I think anyone with small children would take that over a 30 minute temper tantrum or 30 minutes of diapering.
Eight days later, I still know nothing. That is a bit frustrating. I would like a medical professional to tell me that my brain is "okay." Crazy thoughts start to surface when you have no idea. Again, I am sure if there was something to worry about, they would have called. I did call yesterday morning to ask about the results and to discuss the lingering headache. No one ever returned my call. I tell you, healthcare needs help. But, that is another story that I just don't want to get into. My issue may be minor when compared to someone who has Parkinson's, but it isn't minor to me. It scares me. If I miss out on a full night's sleep, am I going to have another seizure? I have no idea. Are the headaches I have a normal side effect of medication? I have no idea. I did look online, but it doesn't have a headache listed as a common side effect. Of course, Doc's roll their eyes at those of us who go online to "self-diagnose." But, if we can't get a return phone call for 2 simple questions, what are we supposed to do?
So, almost a month into this whole seizure fiasco, I have a headache and I am frustrated.
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